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Pregnant or TTC, crunchy and high risk [entries|archive|friends|userinfo]
Pregnant or TTC, crunchy and high risk

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intro [Jul. 20th, 2012|08:07 pm]


Name/LJ name: Bria
Age: 26
Location: Dallas, TX
Partner's name: James
Kids' names and ages, due dates, or TTC: Peter, 2.5 years. loss at 7 weeks on 10/26/2011 and loss at 7 weeks on 3/24/2012
Reason for joining: I *just* received a phone call from my OB about some genetic testing results, and he said my tests indicate I am positive for both the MTHFR mutation and a prothrombin gene mutation. I don't know the specifics yet, but I hope to get those in the next few weeks after he sends the stuff to a geneticist and so on.

cut because i got ramblyCollapse )
I'm not even sure if I belong in this community, but I thought it couldn't hurt :/
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Epidural [Jul. 18th, 2012|01:06 pm]


Having Peripartum Cardiomyopathy and high blood pressure, I have to endure a scheduled birth. This includes being induced (fun fun) and an Epidural. With my first, I was drug free, until they had to induce to save my son (I was in labor for 41 hours).

So....I feel like I never get a good answer. What is an epidural like?
1. I am phobic of needles. I know I can't see it, but for me, that's more scary. It's like - what would be more scary to you? Having someone rip a chainsaw behind your back? Or in front of you?
Anyway, is it a tiny pinch? Or worse. I guess it's the whole tube incerted in your back thing that sounds super painful to me. And I'm not sure if I'll be having contractions during this or not. (Plan to ask my OB which comes first the day of, never thought of it before - epidural or pitocin)
2. Will I feel anything at all? Will I be paralyzed? Can I walk? I was told I'd feel numb, but to what extent, I don't understand what that means. Does it basically just not hurt to have contractions, and that's it? What is pushing like then?
3. Does it happen often that it just wares off, or doesn't work at all?

I have to have an Epidural because the lack of pain will slow my heart and keep me from going into heart failure, or having a heart attack during labor. But my anxieties over the procedure itself isn't helping.
Any kind words of encouragement? (No horror stories please, won't help me)

Oh, and "Labor Day" is about 2 months away.
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Intro to me. [Jul. 3rd, 2012|02:36 pm]

[Tags|, ]
[mood |depresseddepressed]

Hi my name is Brittany, I am 34 weeks pregnate with a baby girl who has Hypoplastic left heart syndrom. Bassicaly the left side of her heart dosnt work the way it should. When she is born she with undergo 3 surgerys to make her heart work the way it should. As of right now she is growing small. She is only 3.5 pounds at 34 weeks. I am also having issues with her amniotic fluid dropping went from 9 to 6.7 in a week and a half. We see an obgyn 2 times a week and a cardioligst once a month. She aslo has a 2 vessel umbilical cord. I have a history of hypertension also. So to sum it up this pregnancy has been quite the rollercoaster so far. I have a 11 month old son also. We have nothing ready for a baby girl due to the fact that we dont know what will happen. Her first surgery has a 75% survival rate so hopefully things will go good.  
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Lets Talk Epidurals [Jun. 9th, 2012|06:56 pm]


So, until last Monday, I had no idea there was a such thing as a medical "need" for an epidural. I mean, for real? Turns out I may be one of them.

After finding out (by fluke, my OB ordered an endocardiogram on a hunch pretty much) that I have an enlarged arotra and left ventricle and a low injection fraction. What does that mean? It means that the further along I get, the harder my heart works, and the harder it works, the more at risk I am for heart to go "Kablooee".

So I was told I need to go back on my BP meds, no big deal. But that I would also have to have an epidural. What? I was just getting used to the idea of the nightmare of having an induction AGAIN, now an epidural too? Apparently it's supposed to slow my heart. But the more I read and the more I think about it, I really question it. And I will, for my next Monday morning appointment.

But in the mean time. Any stories? Did you have to have an epidural that was not of your own choosing? What was it like? What happened? Why did you need one?
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Big Update.... [Jun. 6th, 2012|08:08 am]

Monday I went back to the Cardiologist. (3rd time now) My Mother drove from 2 hours away to go with my husband and I. It was, the hardest Doctor visit I've ever had.
Honestly we left with news that I could possibly die for having this baby. I have an enlarged aorta, and left ventricle, my heart is only pumping out about 30% when a normal heart pumps out 50%. And as I get more pregnant, this can only get worse, and my heart has to work harder and harder just to supply me and baby blood. Which could lead to having a heart attack.
I'm 30 years old, and my heart is as bad as a 70 or 80 year old who's had a heart attack. And my Doctors can't explain it. The cardiologist suggested we do a scan to see if my heart may have any clots. But this scan will expose the baby to radiation which scared the hell out of me.
Needless to say, I was a blubbering mess this whole time, I could hardly control myself trying to hold back tears. As soon as the Dr. left the room I nearly fell to the floor as my husband grabbed me and I burst into tears.
I wanted to go talk to my OB right away because the Cardiologist just couldn't answer so many of our questions. (Obviously, I am NOT his typical patient) But I was too much of a mess. I just wanted to get out of there. After going back home and letting myself have a good cry and calm down, My Mom and I did go back to see my OB to talk.
Luckily, he made everything less grim. I went from thinking "Ok, it's me or the baby" to him telling me I have a 1% chance of dying here. Right now, the baby is fine, aside from her kidney (Nephrohydrosis), but we don't know everything yet. Her heartbeat is normal, I still feel her moving daily. Still haven't gotten her genetics test back yet, even though they said we'd get it yesterday by 5 pm.
So for now, I'm back on my BP meds, taking my blood pressure daily. I cannot have any strenuous activity. I need to keep stress and anxiety down (so easy right?) and I need to keep my sodium down. For the birth they want me induced early, and I have to have an Epidural, which I HATE, but apparently it will keep my heart rate down, and keep me from cardiac arrest. So in that case, how can I argue? I need to have some more tests done, and go back to the Cardiologist in a month. I see my OB again in a week for more ultrasounds and talk more about my heart since when I saw him he didn't get a chance to talk to the Cardiologist yet about my results.
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Labor Relaxation Methods [May. 17th, 2012|08:53 am]


What have you done to help ease your labor? Relaxation techniques? Hypno birthing? Meditation audio on the ipod?

If you have advice, I'd love to hear it.

My first labor experience I did not know how to relax. I had no sleep, and my labor was 41 hours long. Obviously, I don't want that again. So I'm looking for tips on things that really helped give others a nice birthing experience (drug free, of course)
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Inducing Early [Apr. 30th, 2012|12:13 pm]

[Tags|, ]
[music |Teenage Fanclub]

Hello again!

I am high risk due to high BP. I've posted a few times now.
One issue I've had with my OB is that they want to induce me at 39 weeks (I'm only a little over 16 weeks now). My Ob finally explained the whys to me. I sort of get it. But, I still do NOT want to need pitocin. I had to do it (emergency situation) with my first natural birth, and it was so painful.
Any advice on inducing yourself naturally, that have worked for you? (Anyone else that may have needed to be induced, but chose to do it naturally over pitocin?)
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High Risk Natural Birth [Apr. 17th, 2012|07:31 pm]

[Tags|, , , ]

Has anyone with High Blood Pressure/High Risk gone through with having a drug free birth? I plan on going pain med free any way around it of course, but my OB wants to induce me before I'm full term, which makes me furious. (She won't be delivering my baby anyway, I'm moving) Is this standard for High Risk Pregnancies?

With my (now 7 year old) I had to be induced during my natural birth, 39-40 hours in because he was in danger. It took me 2 hours to finally decide to do it because I felt so conflicted. When you go through a Bradley Birthing class, you feel like a horrible person for agreeing to any drugs.
Anyway, it was so painful. My labor was already going on for damn near 2 days, and I was on NO sleep. I was so exhausted I was near delusional.

I don't want that again...ever. Especially if I'm not even in labor yet, and it isn't for the purpose of saving my baby's life.
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(no subject) [Apr. 16th, 2012|07:05 am]

Name/LJ name:  Laura
Age:  35
Location:  WA State
Partner's name:  Steven
Kids' names and ages, due dates, or TTC:  TTC
Reason for joining:  Company, friendship, encouragement

Hi!  I'm here for the company while TTC.  I can't believe I'm trying to conceive!   Never thought I would.  I got married this last winter and that changed everything.  

First, the challenges.  I got my tubes tied 8 years ago (bipolar cautery).  I recently found out that I have a septate uterus, which means that my uterus is sort of divided down the middle and the membrane that divides it makes an inhospitable environment for an egg to implant.  I think some people call this a "heart shaped uterus".   I found one study that said there is a 40% early miscarriage rate due to the egg implanting in the septum instead of the wall of the uterus.  

A couple times over the years I've felt like I was pregnant and thought I was crazy.  This was before I knew about my septate uterus.  A tubal is permanent, yes, but not 100% effective.  Not even the most effective form of birth control.  So.  I'm thinking maybe my tubes healed themselves.  It's just scar tissue, and I have been drinking a lot of green smoothies.

Mid-march, I really believe that I was pregnant.  I had an 18 day LP and all kinds of symptoms.  Lately my LP has been 12 to 13 days.  My husband noticed that something was up too.  We surprised ourselves by wanting it.  Then I had an extra heavy period with cramps, and I never get cramps.  My husband's father passed away two weeks later, and now we find ourselves actually trying to conceive.  We believe in the power of faith and positive intentions.

I've always been a regular ovulator and have kept a chart off and on.  My fertile window opened today. ;-)

And I have a question.  My husband likes to take baths.  I've heard that really hot baths can kill sperm, but in my  opinion his baths are not very hot at all.  Are moderately hot baths ok?

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2nd Child, High Risk for Pre-existing High BP [Mar. 25th, 2012|11:53 am]

Anyone still here?
I've been searching for somewhere where I could talk to people like me, better yet, people who prefer things natural, having to deal with having a high risk pregnancy.

I found out I was 10 weeks pregnant March 6th. (I already have a 7 year old) So it was a surprise. With my Son, I had a natural birth with a midwife, and everything went fairly well.
This time, I'm forced to see an OB (specialist). I was so upset hearing that news. I tried arguing maybe I don't really have high BP, every time I've had it taken (which since I gave birth in 2004 was twice in the last 6 months due to sickness) it was high, probably because I just hate hospitals, and I was freaking out when I did come in. I NEVER go to the hospital unless something is seriously wrong. But, it didn't matter. Now I'm sitting there upset, and filling with the fear that an OB will just take over my body with invasive tests, and at the end possibly just cut me open, or induce me or whatever else they feel like.

So I had my 1st OB appointment.....I hated it. Right away she wanted to put me on BP meds, without letting me try to lower it naturally with some supplements first. I believe she said "Yeah I don't know anything about that. You have to take the meds." Oh, thanks so much. "Are there side effects" she says"Well, all medication has side effects. If you followed that rule, no one would ever take anything" I said, "Yeah....that's why I never take anything." I meant that. I use herbs, not pills. So she said "Well, I have to look it up (the medication she wanted me to take)." I'm thinking, you have to look it up? You're a high Risk Specialist? Shouldn't you just KNOW this? So she turns the screen to me with a list of medical terms I have no idea what they mean - like I'm supposed to understand this. That was her way of assuring me. Seriously. She sent in a prescription anyway.

We drove home. I was waiting to decide if I wanted the meds, trying to think a way out of it. When I got home an old high school friend IMed me asking why I'm High Risk. I wasn't announcing it on Facebook, but she must have seen me mention it in conversation to my cousin. So we started talking. She was telling me about how she lost her daughter when she had preclampsia. I won't go into it, but her Dr. didn't seem it was necessary to take any extra precautions, and her baby died after it was born. I didn't know this story. I thought she had just had a miscarriage. So it was a big eye-opener for me. It really put my situation in perspective. Suddenly me hating Doctors, and not wanting this medication seemed silly. So I went and picked it up.

In the when morning I took my first pill at 8 am. By 9:30, I was hit by feeling hyper and jittery, my hands started shaking so bad. Then My scalp felt tingly, my mouth feeling dry. I called my Doctor and had to leave a freaking MESSAGE. Luckily, these side effect started to subside around 9:50, and I felt better by 10. But before calling, I looked up my medication, because all I was told for side effects was DROWSINESS and DIZZINESS. Not Jitters and hyperness or otherwise. So as I look up this medication, the first 5 where talking about how this medication hasn't been tested much on human pregnancies (after I was assured it was very safe) and can cause a multitude of Birth defects. Now I'm left here thinking "What have I done?"

Later that day, I was told to come back in to the hospital, I had to see the other OB on call, and he took the time to listen to me, gave me alternatives, and took me off my current meds and gave me safer ones with little to no side effects on the baby and minimal to me, with a slow release. So I felt much better.

So that's my story if anyone is reading.
Anyone else feel like without a midwife, you've lost all control of your own choices? How do you deal with all the testing, and interventions. and my biggest question - how do you deal with being told they want to induce you early? When I asked my Doctor why, she just answered with "That's just what we do" (Yeah she's REAL awesome at answering my questions)

So far, I've had my 24 hour urine test and my first blood draw. God knows what else I have yet to go through.
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